Parent Matters Evaluation
Canteen is funding Parent Support Worker Services in certain hospitals. These services offer information, support and community connections to any patient whose children are under the age of 25 years. Parents can attend for one or multiple sessions with the Parent Support Worker, depending on their need. The aims of the service are to increase parents’ confidence communicating with their children about cancer and offer them the opportunity to discuss the emotional impact of their cancer on their children. Undertaking an assessment with the parent/s enables further connections with appropriate support for children if required.
This service differs from standard social work services as it provides specialised information about the specific challenges around parenting with cancer and it separates this issue from other social and practical challenges. Another focus of the service is to identify which patients are parents so that they can receive appropriate support in a timelier fashion.
The Parent Matters Evaluation aims to evaluate the Parent Support Worker Services to assess benefits for parents and their children, integration of the role within the multi-disciplinary support team, and to inform future services.
Parent participants will be invited to complete a 10-20 minute survey before their first session with the Parent Support Worker, and 3 months later. This survey asks about parenting concerns, your family, and how you feel. Parents may also be invited to participate in a short interview if they wish.
Staff participants will be invited to attend a 30-45 minute interview. Interviews will focus on your understanding, participation, and observations of the addition of the Parent Support Worker role.
Cancer raises unique challenges to parenting. Parents report feeling unsure about how to talk to their children about cancer, and would like support from health professionals. Not all health professionals are comfortable having these discussions. It can therefore be helpful to have a Parent Support Worker in hospitals to support and guide parents with these parenting concerns. The outcomes of this research will help us to improve the Parent Support Worker Service for parents, maintain the service, and possibly add the same service to other hospitals.
We are very grateful to our participating sites:
Peter MacCallum Cancer Centre
The conduct of this study at the Peter MacCallum Cancer Centre has been authorised by the Peter Mac Research Governance. Any person with concerns or complaints about the conduct of this study may contact Peter Mac Research Governance Officer on 03 8559 7540 or the Consumer Liason Officer on 03 8559 7517 and quote reference number HREC/17/HNE/294.”
John Hunter Hospital
The ethical aspects of this study and conduct of this study at the John Hunter Hospital have been approved by the Hunter New-England HREC [17/07/19/4.03]. If you are not happy with how we are doing the study or how we treat you, then you can call the Hunter New-England Ethics Committee Executive Officer on 02 4921 4950 or email Hnehrec@hnehealth.nsw.gov.au.
Campbelltown and Camden Hospitals
The conduct of this study at Campbelltown and Camden Hospitals has been authorised by the South Western Sydney Local Health District. Any person with concerns or complaints about the conduct of this study may also contact the Research Governance Office on (02) 8738 8304, email: SWSLHD-Ethics@health.nsw.gov.au and quote project number HE18/160.
There are current Canteen-funded Parent Support Worker positions at the following hospitals:
You can download the Parent Information Pamphlet for Peter Mac here
You can download the Parent Information Pamphlet for John Hunter Hospital here
You can download the Parent Information Pamphlet for Campbelltown and Camden Hospitals here
Please click on your hospital to view the appropriate information and consent form or to contact the Parent Support Worker at that hospital.