This study is no longer recruiting participants. For more information, please contact the Research Team at [email protected]
Validating the Bereaved Cancer Needs Instrument
We are undertaking important research to better understand the needs of young people who have lost a parent/primary caregiver or sibling to cancer. We are aiming to learn more about the emotions and relationships of our young people to improve the support we provide.
To help us do this, Canteen has developed the Bereaved Cancer Needs Instrument (BCNI). The questionnaire asks young people about their unmet needs from different domains of everyday life (for example help dealing with feelings, connecting with family, or accessing support from other young people).
Publications
Journal article
What young people need when a family member dies of cancer
McDonald, F.E.J., Patterson, P. & Tindle, R. (2019). What young people need when a family member dies of cancer. Supportive Care in Cancer. 28.1631-1638. doi.org/10.1007/s00520-019-04973-0
Journal article
Initial validation of a needs Instrument for young people bereaved by familial cancer
Patterson, P., McDonald F. E. J., Costa, D.S.J., Tindle, R., Allison, K. R. & Morris, S. (2019). Initial validation of a needs Instrument for young people bereaved by familial cancer. Supportive Care in Cancer. Advance online publication. doi.org/10.1007/s00520-019-05104-5