To provide the best support to you at Canteen we need consent to collect and share information about you with others. Information we collect may include your age, gender identity, cancer experience and information about what Canteen services you are using.
We will keep this information private and only share information if we need to. You have a right to access this information. These are the different ways we might use the information we collect about you and what we do with it.
At Canteen we collect information about you so we can provide you with support and/or link you with other external services. When you access support from Canteen, your information is entered into a secure electronic record.
For Canteen to provide you with the best possible support, some of your information will be available to other staff within Canteen. Accessing your information will always be for the purpose of providing you with the best care possible and by staff who are involved with your care.
We may ask you to give us consent to share relevant information about you with other organisations to assist you in obtaining additional support or services from them. For example, we might offer to speak with someone at a school or university to see what special considerations might be available to you because of the impact of your cancer experience If this is the case, we will talk with you further.
If we are concerned about your safety (e.g., if we think you might hurt yourself or if you tell us someone else is hurting you), we have a duty of care to inform relevant agencies and people who can support you further. In these cases, we would provide the other service with your demographics as well as the reason for the report (i.e., the safety concerns).
Some information you provide to us may be used to understand how well Canteen is supporting you or others. There might be times that we use some of the information that you’ve shared with us with people outside of Canteen that you do not know. This could be about your cancer journey or the ways Canteen has helped you. We might share this with are people who donate or give money to Canteen. We may also share this information with people who work in hospitals, organisations that assist young people, people who work for the government, researchers and others.
We do this so that these groups of people understand who we help and how we help them. It helps us to get funding to keep providing support and services to young people. And it also helps to change systems and policy. In this way Canteen, and you, can help make broad change and improve the wellbeing for other young people living with cancer.
When we use your information for understanding how Canteen is supporting you and with people outside of Canteen, it will not include your name. No one will know it’s your information. We may mention some general details such as your age, or gender, or something about where you live, if that is helpful for people to understand the information we are sharing with them. We may include your quotes in a report, use it in advertising or fundraising for Canteen and/or show it to other people, however, we won’t disclose your name when using your quotes, and no one will know that it’s your information.
Sometimes you will be invited to take part in research studies so we can better understand how to support young people, or in evaluation studies where we assess how useful Canteen’s program and services are. You will likely be contacted by either email or text message to be part of Canteen’s research. It is always your choice if you want to take part in these studies and saying no will not change how you access programs and services at Canteen.