NSW/ACT YCS - Jan 2020 Update

NSW ACT YCS recently welcomed two clinical appointments to newly created AYA positions in Western Sydney and Hunter New England.

Dr Paola Kabalan Baeza, Paediatric oncologist/Haematologist has been appointed AYA clinical lead at Hunter New England Youth Cancer service and will manage patients between John Hunter Children’s Hospital and Calvary Mater Newcastle. Paola has fit into the service like a dream and has made significant headway across both hospitals toward ensuring young patients can be treated close to home as well as strengthening pathways between hospitals.

Dr Azhani Amiruddin has been appointed AYA clinical psychologist at Western Sydney Youth Cancer service based at Westmead Hospital. Azhani brings significant experience and enthusiasm to the role and, as the first YCS psychosocial position in the hub, is already a critical component to AYA care in WSYCS. Welcome Paola and Azhani!

YCS farewelled YCS Clinical Psychologist Karen Matthews. Karen’s work and dedication to AYA cancer care was integral to the establishment and development of Hunter New England YCS and she will be missed. Recruitment for the vacant position will begin shortly. The care from the Hunter YCS staff was recognised within the District taking out Team of the Month at Calvary hospital, well done team!

Team of the Month July

Following the finalisation of NSW ACT Model of Care in October, the jurisdiction held a full day meeting with representatives from both partnered and non-partnered sites, NSW Ministry of Health and Canteen. The round table discussion functioned to identify further gaps in current AYA cancer service delivery across the jurisdiction and how best to address. A great opportunity to see all health partners from across NSW ACT coming together to ensure best practice AYA care.

YCS psychosocial team members from COBL, SYCS and HNEYCS travelled across the globe in October to International Psycho-Oncology Society symposium in Banff. YCS congratulates SYCS psychologist Ursula Sansom-Daly who was awarded The Hiroomi Kawano New Investigator Award.

IPOS 2019 - receiving New Investigator Award w Jane Turner

SYCS Sony You Can Centre as part of Prince of Wales Survivorship Centre Randwick is nearing completion with final touches being made and furniture ordered – The staff and patients are very much looking forward to the opening in a few short months.

The YCS team at Chris O’Brien Lifehouse (COLH) Camperdown have also had exciting news with recent announcement of partnership with Sony Foundation. The team are working with architects to progress plans for a new YouCan Centre which will occupy an entire level of the COLH. The new centre will comprise of AYA clinic areas, 4 self-contained accommodations and group program spaces to be utilised by patients and YCS and due to open mid-2020. Watch this space!


Global AYA Accord: End-of-life communication study

Ursula Sansom-Daly (Clinical Psychologist, Sydney Youth Cancer Service) is leading a study focused on understanding and supporting better practice in end-of-life communication with AYAs with cancer. The study is recruiting internationally and we are eager to include as much local expertise and experience as we can, to make sure our study results will really benefit the YCS community! As a reminder, you are eligible to do the survey if you are a health-professional (any discipline) who has worked with 5 or more AYAs aged 15-39 with cancer who died throughout/across their end-of-life phase. The survey takes approx 15mins and will be vital to informing next steps in improving youth-friendly care in this space. Please do consider taking part in this survey, and please also share widely with any relevant colleagues outside of YCS services.

Link: https://unsw.au1.qualtrics.com/jfe/form/SV_6PxNeyZxr22H5EV


NSW/ACT YCS is recruiting a Social Worker at Westmead Hospital. For more details, click here.